Namesake Collections

Meet Thomas James, TJ.

Thomas James, TJ, was my little brother and a heart warrior. He was born July 11, 1994 with an undiagnosed heart valve defect. My mother always felt like something was not quite right since he always had a bluish tinge to his skin, but the pediatrician was very adamant that everything was all right. Finally, after speaking with a friend who was a nurse, she sought out a specialist. At 3 months TJ was diagnosed with an improperly formed heart valve and underwent his first open heart surgery shortly thereafter.

A Trisomy 21 Warrior Addison Rae Feldmann was born May 17th, 2019. She was born at 27 weeks with T21. Addison was born weighing 2 lbs 13 oz. She wa...

A Trisomy 21 Warrior We tried for 5 years and finally were blessed with Owen! We found out while we were pregnant he had a 63% of being born with T...

Tripp, a Stillborn Angel I was pregnant with Tripp for 39 weeks, and those 39 weeks were full of love for him. I had a very uneventful pregnancy. T...

A Trisomy 18 Angel Dane Thor Sogge is our Trisomy 18 warrior who lived his life to the fullest. He has a smile that will light the room and would c...

A Stillborn Angel At thirty nine weeks and one day into my pregnancy, I woke up in the middle of the night. I was not feeling Emma move. I tried to...

A Trisomy 18 Warrior Alistair is a strong, courageous warrior. He has Edwards Syndrome and Lennox-Gastaut Syndrome (a rare form of epilepsy). He i...

A Micro-Preemie Warrior December 2018 was a particularly emotional time for me. My husband of 1.5 years and I were coming up on the due date of our...

A Trisomy 18 Angel Lillian has the most kissable nose, the most gorgeous blue eyes, curls that went on for miles, and a smile that can brighten eve...

A Cri Du Chat Angel Melitta Maelyn was born premature with Cri Du Chat syndrome along with other medical diagnoses. This tiny little fighter came i...

A Canavan Disease Warrior Tobin was born on an early September morning and she came into the world bright eyed and healthy! I joked that we got a u...

A Trisomy 18 Angel Zion Emma was born with trisomy 18. We learned of her possible diagnosis at 13 weeks gestation when she tested high risk for tri...