Namesake Collections

A Developmental Epileptic Encephalopathy 41 Warrior When Deacon was 2 days old, he had an unexpected seizure. They flew him to a Children's Hospita...

A Severe Ebstein's Anomaly Angel Emmett was born on September 1st, 2023, with severe Ebstein's anomaly and spent his entire life in an inpatient se...

A Trisomy 18 Angel Keslyn Joy was a miracle from the very beginning. Born weighing 2 lbs and 13 oz and diagnosed with Trisomy 18, she entered this ...

A Preemie Warrior Londyn was born 12 weeks premature due to mom having HELLP syndrome, which is caused by untreated preeclampsia. Londyn spent 98 d...

A Trisomy 18 Angel On November 24, 2020, I stood in my bathroom with Vivian’s dad, Cameron, waiting on the results of two pregnancy tests. We were ...

A Full Trisomy 18 Warrior Lexi is a 16-year-old young lady who has Full Trisomy 18. She has overcome many challenges throughout her 16 years. She l...

A Congenital Myotonic Dystrophy Warrior Kayliana was conceived via IVF. She was delivered via C-section at 36 weeks due to concerning fetal heart r...

A Turner Syndrome Warrior In May of 2019, I found out I was pregnant with Audrey. We had a few normal-appearing ultrasounds at our fertility clinic...

An HLHS Warrior From the very beginning, we knew we had a special little guy. After 8 years of infertility, 2 specialists, many medications, and gi...

A Trisomy 18 Angel August “Auggie” Mark Ellis was born sleeping on 12/21/2020. Weighing 1 lb 4.1 oz and was 12.5 inches long. At a routine ultrasou...

A Full Trisomy 13 Angel Anna Grace redefined hope and time for her family. She was born with a prenatal diagnosis of Trisomy 13. At 20 weeks of ges...

A Trisomy 18 Warrior Amelia was born the youngest of three children to her parents, Kim & Bill, on Friday the 13th of 2020 (aka the day the wor...