Namesake Collections

Mason, a Pfeiffer Syndrome Angel Mason was born with a very rare genetic disorder called Pfeiffer Syndrome. This condition causes premature fusing ...

A Tubulin Beta III Warrior Alaya was diagnosed with TUBB3 at 6 months old, which stands for Tubulin Beta III and is located on Chromosome 16. TUBB3...

Kaeli, a Kabuki Syndrome Warrior I remember April 8th of 2020 like it was yesterday. I was sitting at the kitchen counter when my phone rang. A num...

A Spina Bifida and Trisomy 18 Angel Katie-Rae was born on the 10th of August 2016, weighing a tiny 4lb and fighting strong. We had been told before...

Grayson, a Ketotic Hypoglycemia Warrior This is Grayson! He is the most sweetest, kindest, loving, silliest boy ever. I had an urge to go check on ...

A Hypoplastic Left Heart Syndrome Warrior My name is Britney, and my daughter is Kambreigh Faith. She was born with a severe heart defect called Hy...

Emmie was a monoamniotic-monochorionic twin who was born at 31 weeks. She was 3lbs 6oz and 15 inches long. Her twin sister Ella was born less than ...

A Trisomy 10 and Trisomy 21 Angel When Covid hit our state of California, my husband’s field of work folded because he couldn’t work from home. We ...

Jordan, a Preemie Warrior Jordan was born at 26 weeks, while I was intubated from the complications of covid. I was on week 3 of being intubated. T...

Ember, a Mosaic Trisomy 18 & Heart Warrior My daughter is named Ember. She has Mosaic Trisomy 18, and she is 6 years old. We didn't know about ...

Parvana, a Trisomy 18 Angel When we found out we were expecting Parvana, my husband, Paul, was finishing his degree at Auburn University. He acce...

Lochlyn, an Achondroplasia Dwarfism Warrior At 33 weeks, we were surprised with the news that our last baby had a rare and fatal form of skeletal d...