Pavie

A Vater Syndrome and Midaortic Syndrome Warrior

Pavie has Vacterl Association with Vater Syndrome and Midaortic Syndrome. There are less than 1,000 kids in the US who have Midaortic Syndrome. Pavie has been in the NICU for 40 days now and has had 1 surgery so far. She has a g-tube and stomach bag. Her spine also splits higher than usual. There are only a few reported cases of this happening worldwide. She is 1 in a billion. 💕 She’s our little trooper.