Namesake Collections

My second NICU baby, my Evelyn Marie! Born at 34 weeks and 5 days, she spent a little over a week in the NICU with fluid on her lungs and oxygen. W...

An HLHS Warrior Rheytt was born with Hypoplastic Left Heart Syndrome (HLHS) on 9/3/23. She underwent her first open heart surgery called the Norwoo...

A Gastroschisis Warrior Meet HollyRose! At my 20-week scan, we discovered she had Gastroschisis, a birth defect causing a hole in the abdominal wal...

An HLHS Angel Dakota was born with HLHS, had 6 surgeries, two strokes,  one lung, and was on oxygen full time. He was a very loving, caring young m...

A CDH Warrior My child was born with a condition called Congenital Diaphragmatic Hernia - CDH for short. This condition means he doesn’t have a dia...

An Autism Warrior Colter is a super sweet, smart, and funny little guy who is just a bit special. Around age 2, we quickly realized Colter was a bi...

A Trisomy 18 Warrior Paislee was born and tested, showing to have Mosaic Trisomy 18. I did everything in my power to find a doctor who would repair...

An Anal Imperforate Warrior Kasen was a preemie and was born with a connecting anus. He has had to wear a colostomy since he was a few days old. He...

A Stillborn Angel Thomas Paul Burton Jr. (TJ) was born sleeping on September 25, 2019, at 12:57 a.m., weighing 3 lbs 5.6 oz and measuring 16 3/4 in...

A Trisomy 18 Angel Our beloved warrior, Maria Eloise, was diagnosed with Trisomy 18 at 11 weeks gestational. Like many other parents given this new...

A Vater Syndrome and Midaortic Syndrome Warrior Pavie has Vacterl Association with Vater Syndrome and Midaortic Syndrome. There are less than 1,000...

A Cerebral Palsy and Hydrocephalus Warrior Serenity was born at 25 weeks, weighing 1 lb 7 ounces. She immediately had a shunt put in for her brain ...