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Awareness

Judah Dewayne

Judah Dewayne

Judah was born with a rare pediatric liver disease called Biliary Atresia. He was born without a gallbladder and his biliary system and bile ducts were not formed correctly, stopping...

Mia Mae

Mia Mae

  "Mia was born July 31, 2019 weighing 3 lbs 4oz. At 3 days old she was diagnosed with Trisomy 18. She had her first heart surgery at 2 weeks...

Rose Margaret

Rose Margaret

In a gut wrenching blow our final baby was deemed “incompatible with life” a “fluke mistake of chromosomal division leading to three of the 18th chromosome”. We took a few...

Ryder James

Ryder James

After having one miscarriage and one ectopic pregnancy it was time to have the talk.  My husband and I sat down In January 2015 and decided no more children. 

Grace Victoria

Grace Victoria

Joy, amusement, love, gratitude, humility, and honor. These are some of the feelings that my daughter Grace Victoria makes me feel.

Lillian Rose

Lillian Rose

“’Trisomy 18.’ ‘Incompatible with life.’ I think back to the day those words shook my pregnant body to the core and crushed the deepest parts of my soul. I quickly...

To Lillian:

  • Searching for You

    Searching for You

    March 2022

    We are constantly searching for you, sweet girl. We look for you in the sunrise and sunset. We see you in the birds, butterflies, and moths. We feel you when...

  • Life With Trisomy 18

    Life With Trisomy 18

    February 2020

    Life With Trisomy 18 Last night I was thinking about what life would be life if Lillian didn’t have Trisomy 18. I thought back to her diagnosis and how devastated...

  • To Lillian

    To Lillian

    June 2019

    They told us that you would be scary looking—that you wouldn’t look anything like a “normal” baby. But the worst thing they told us was that you would never be...

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