Awareness

Judah was born with a rare pediatric liver disease called Biliary Atresia. He was born without a gallbladder and his biliary system and bile ducts were not formed correctly, stopping flow of bile from the liver to the intestines.

  "Mia was born July 31, 2019 weighing 3 lbs 4oz. At 3 days old she was diagnosed with Trisomy 18. She had her first heart surgery at 2 weeks old ...

In a gut wrenching blow our final baby was deemed “incompatible with life” a “fluke mistake of chromosomal division leading to three of the 18th chromosome”. We took a few days to grieve. The once feared baby was now one we were begging for.

After having one miscarriage and one ectopic pregnancy it was time to have the talk.  My husband and I sat down In January 2015 and decided no more children. 

Joy, amusement, love, gratitude, humility, and honor. These are some of the feelings that my daughter Grace Victoria makes me feel.

“’Trisomy 18.’ ‘Incompatible with life.’ I think back to the day those words shook my pregnant body to the core and crushed the deepest parts of my soul. I quickly went to Google searching for hope. Instead, I found none. I closed my web browser feeling worse than when I opened it. I didn’t understand how the baby so full of life within me could be THAT sick. I didn’t understand how she was so beautiful in her ultrasounds, yet the doctors would only tell me about how ‘scary’ she would look.