Awareness

  "Mia was born July 31, 2019 weighing 3 lbs 4oz. At 3 days old she was diagnosed with Trisomy 18. She had her first heart surgery at 2 weeks old ...

In a gut wrenching blow our final baby was deemed “incompatible with life” a “fluke mistake of chromosomal division leading to three of the 18th chromosome”. We took a few days to grieve. The once feared baby was now one we were begging for.

“’Trisomy 18.’ ‘Incompatible with life.’ I think back to the day those words shook my pregnant body to the core and crushed the deepest parts of my soul. I quickly went to Google searching for hope. Instead, I found none. I closed my web browser feeling worse than when I opened it. I didn’t understand how the baby so full of life within me could be THAT sick. I didn’t understand how she was so beautiful in her ultrasounds, yet the doctors would only tell me about how ‘scary’ she would look.