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Omar

Omar

We are so blessed to be celebrating Omar's 10th birthday. We received a grim prognosis when we learned he has Trisomy 13. However, in true Omar fas...

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Haddie

Haddie

Haddie is turning 2! Haddie means "ruler of the home" and Louise means "warrior" and she has proven both to be true! She was unexpectedly diagnosed...

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Jerzey

Jerzey

Jerzey is truly the sweetest soul you’ll ever meet, pure joy wrapped in love. She is the light of our family, and every single one of us is wrapped...

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Arrow

Arrow

Arrow was born with full Trisomy 13, a rare and life-limiting condition. Though his life has been marked by medical challenges, it has also been ov...

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Samuel

Samuel

Our son Samuel was born with Trisomy 18. We spent 3 very short hours with him, trying to memorize every detail. He was 1lb 7oz and 12 inches long. ...

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Maggie

Maggie

Hi, this is Maggie, and we're celebrating her BIG 5 this year! Maggie was born on July 15th, 2020, with a rare genetic disorder called Trisomy 18 (...

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Kora

Kora

Kora was born August 28, 2018 at 34 weeks. While in utero is was suspected that she had trisomy 13 due to her rocker bottom feet, dilated kidneys, ...

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Stevie

Stevie

Stevie was fully of life and full of personality. From the very beginning she knew what she wanted and always led the way for us. She was diagnosed...

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